I am a 26 year old mother of two. I have a 20 month old daughter, Savannah, and a 7 month old son, Logan. Logan was born with many different, very rare birth defects. He has missing, fused, and deformed vertebrate in his spine, missing ribs, tethered spinal cord, and he was born with a congenital heart defect known as Tetralogy of Fallot w/ pulomonary artresia. At two weeks of age Logan underwent heart surgery at Boston Children's Hospital. December 13, 2007 he underwent surgery for a G-tube, a device that goes directly into his stomach so he can feed. Because of Logan missing ribs, his lungs are very small. Too small to support his body. Logan is ventilator dependant. January 16, 2008 he underwent surgery for a tracheostomy. A surgery, because of Logan's anatomy, Boston Children's Hospital said could not be done. His whole life so far is nothing short of a miracle. Our baby boy is 7 months old and has never been home a day in his life. Now that he has had the tracheostomy this makes it possible for him to come home. The problem.......we live in a small in-law apartment. In order for Logan to come home we need the space for him and all of his equipment (ventilator, oxygen tank, suctioning equipment, medicines, and a special hospital crib). There is a garage bay directly next to our apartment that is not being used. We would like to expand our apartment into the garage. When Logan comes home he will need a pleasant, open enviroment that will be easily accessible. He needs an enviroment with a central location where he will be around everyone. He needs an enviroment where he can thrive. We do not know where to go or who to ask for help. My children's father works full-time and I stay at home, care for our daughter and when I'm not doing that I'm at the hospital learning to care for Logan. We need financial help. NH Health & Human services has been more of a burden then a help and I have searched every charity and organization out there, with no luck. My resources are exhausted. We can't bring our baby home unless we have adequate space for him. We were unaware of Logan's condition until he was born. We were not prepared. We didn't think this could happen to us. So anyone reading this, please, if you have any help, ideas or resources for us let us know. Any help is appreciated. I urge you to check out the website I made for Logan. www.loganberthiaume.mysite.com
